California Health Report | HealthyCal - Part 12
 

California Health Report

  

Seizing the chance to redefine aging

By Matt Perry
California Health Report

There was only one possible topic I could address for this maiden entry of “The Age of Innocence,” a new, twice-monthly column devoted to Aging.

The death of my mother.

The photo you see to your right is one I took of my mom last June, only a month before she died.

At age 90 and suffering from the debilitating effects of Alzheimer’s, she was housed in an upscale assisted living facility in East Lansing, Michigan, just miles away from where I grew up.

The facility purportedly offered “memory care” for her failing body and brain, but my siblings and I knew this was largely a joke.

In truth, she received virtually no mental or physical stimulation other than endless blaring reruns of The Carol Burnett Show, punctuated by weekly visits from a volunteer pianist and a handful of other obligatory social activities.

Physical activity? Non-existent. Mental engagement? A marketing sham. Instead, she spent days on end being wheeled from her bedroom to the dining room and into the living room.

When I first arrived from California and stepped inside the facility, my mother’s eyes were glazed orbs, unfocused and dull, staring listlessly downwards.

Since older adults in long-term care facilities rarely experience the joy of human touch, the first thing I did was rub her arms, massage her shoulders, and kiss her cheeks.



The Age of Innocence. Life , death and the new world of Aging. For a complete archive of Matt Perry’s columns, click here.


While the facility had a back porch, there was no ramp to allow residents access to the grass or trees below. Instead, a locked gate prevented them from descending into the natural world.

With the help of a staffer, we opened the gate and bumped her wheelchair down the five steps onto the grass. As I wheeled my mother forward, the wind hit her face and she recoiled, then did something simple but marvelous: She looked up, her eyes suddenly alert.

Her feet grazing the grass, hands grasping pine tree needles, nose warmed by the sun, face bracing from the wind – she looked to the horizon and became, for the first time since my arrival, alive.

I knelt down beside her and asked “Would you like me to sing to you?”

“Oh, that would be wonderful,” she replied, uttering her first words of the day, in a voice so clear and distinct it shocked me.

I sang “O Holy Night!” which for years she had performed at Christmas services with my father, then segued into Del Shannon’s “Runaway” and the Turtles’ “Happy Together” – two songs I knew by heart.

Finally, my mom was there with me.

Then she commanded me very clearly “Over there. I want to go over there.”

I wheeled her over the grass to the spot in the photo. This sick, frail, elderly woman then reached up to the iron fence, pulled herself out of her wheelchair and began rattling it.

At 90 years old. All by herself. One month before her death.

And that is when I took this photo.

What rang in my head at this moment were the words of Peter Reed, executive director of the Pioneer Network, an organization devoted to changing the culture of aging: “The way we treat older adults in this society borrows more from the prison system than it does the healthcare system.”

Is it any wonder that my mother was rattling her cage, warehoused in a system that rarely meets the physical needs of residents while almost entirely neglecting their emotional and spiritual desires – not to mention their sensual ones?

What has become obvious during the past year that I’ve covered aging issues is that growing old is much like global warming. We are on the precipice of disaster and can either follow the visionaries who seek to redefine aging, or continue to treat and imprison our parents and grandparents – in their bodies and our facilities.

Do I despair? Yes, I despair for older adults like my mom who have had their humanity stripped from them.

Do I have hope? Yes. Because over the past year covering older adults I’ve been blessed to meet many amazing people who are committed to transforming the aging experience. .

In Sacramento alone – my home – there are several national leaders in the field: Reed, who lives here although the Pioneer Network is headquartered in Chicago. And David Troxel, who has established The Best Friends Approach to Alzheimer’s (with his business partner Virginia Bell who is in her 90’s) which trains long-term care workers to treat dementia patients as if they were their own best friend.

In Silicon Valley, the brilliant physician and longevity expert Walter Bortz has outlined a roadmap for successful aging in “We Live Too Short and Die Too Long.”

AgeSong Senior Communities treats residents at their six Bay Area facilities as “wise elders.”

In California and nationally there are hundreds of cutting-edge programs to keep older adults vibrant and engaged, with more and more springing up every month: The Eden Alternative is changing the physical environment for older adults with sunlight, pets and plants; and the Music & Memory initiative seeks to give every single resident in long-term care an iPod so they can listen to the music they love, as emotionally rendered in the film “Alive Inside.”

While in this column I will occasionally spotlight the terrors of aging, I will typically focus on these powerful reformers who are providing solutions and changing the way we live and age.

Because freedom in our Golden Years is worth fighting for.

 

Using the Affordable Care Act to close the health gap

Photo: Flickr/DoNotLick

By Leah Bartos
California Health Report

Young people may be less likely to suffer from severe health problems, but Tamika Butler wants them — and the lawmakers who draft policies affecting them — to remember they are not immune to illness and disease.

Butler is just one of many advocates worried about how youth of all incomes levels and ethnicities are going to fare once the Affordable Care Act is implemented. She directs the California branch of the Young Invincibles, an organization dedicated to informing and advancing healthcare options for young adults aged 18 to 34.

In California, 3.1 million people in that age group do not have insurance — a pool that accounts for 42 percent of the entire uninsured population in the state.

“We know it’s going to take a shift in culture and a shift in understanding the value of insurance to change the way that people think about it,” Butler said. That shift will need to happen not only in the minds of young people, she said, but also in the policies made in the state Capitol.

Amid the turmoil of the nationwide financial woes, health-care advocates in California are urging lawmakers not to lose sight of what they see as a rare opportunity to help close the gap in the state’s health disparities.

With the Affordable Care Act and the billions of federal dollars coming into the state to back it, the health care prospects for many Californians will improve dramatically. But some worry that if it’s not done correctly, a portion of the state’s population may be left out — specifically, boys and young men of color.

“We’re hoping that they don’t miss this opportunity to expand health care to a really vulnerable population,” said Jamila Edwards, the Northern California Director of the Children’s Defense Fund. “If things don’t go the way we hope, it’s just going to exacerbate conditions for populations that are already super vulnerable and already experiencing inequalities and health challenges.”

In an effort to address some of these inequalities, Speaker of the Assembly John Pérez established the Assembly Select Committee on the Status of Boys and Men of Color in California. The committee sought advice from community leaders in California, including Edwards and her organization, to inform a report it drafted last year, outlining wide-ranging policy recommendations to help alleviate the disparities.

As noted in the committee’s report, young people of color in California — who make up more than 70 percent of the population under the age of 25 — are more likely to face social conditions adversely affecting their health, ranging from inadequate schools and exposure to violence.

Young people of color in California are far more likely to killed in firearm homicides, and in a past survey, Latinos were three times more likely to be murdered than whites.

Some chronic diseases were also found at much higher rates among youth of color than their white counterparts. Asthma, for instance, affects Latino and African American youth at five times the rate as it does non-Hispanic whites.

Ellen Wu, executive director of the California Pan-Ethnic Health Network, has been working on advancing some of the select committee’s recommendations.

“In particular, men and boys of color have specific not only needs but life experiences that need to be addressed and taken into consideration,” Wu said. “You can’t do this one-size-fits-all approach to getting them healthy.”

The report identified health challenges facing even more specific subgroups including young people in immigrant families, foster care, and the juvenile justice system.

In an effort to address the barrier facing young people in immigrant households, the committee recommended that the state’s existing safety net network — such as community health centers and public-based providers — continue to be funded and made available to people of uncertain legal status. Under the Affordable Care Act, undocumented people will not be able to buy insurance through the state’s health benefit exchange. Outreach to these communities, as the report pointed out, also remains a challenge.

“Explaining that to an immigrant family is very complicated,” said Sonal Ambegaokar, a health policy attorney for the National Immigration Law Center. “Most immigrants are not well-versed in how our health care system works and the need for insurance until likely there’s an emergency.”

Ambegaokar added that by law, Medi-Cal and other such programs cannot share application information with immigration authorities. Still, many people remain reluctant to enter their information in the system. She and others worry that this reluctance is not only preventing parents, but also children — who may have full citizenship — from getting the care they need.

“Fear of immigration in general — whether you’re legal or not — keeps a lot of immigrant families as well as their citizen children out of the health care system,” Ambegaokar said, adding that 80 percent of California’s children live in mixed status families.

On the opposite end of the spectrum, the report had additional recommendations to provide coverage for youth very much in the system.

Just as the Affordable Care Act has allowed young people to stay on their parent’s health insurance plans until the age of 26, the report endorsed similar legislation that would continue coverage for former foster youth in California.

Governor Jerry Brown has already approved a bill to expand Medi-Cal coverage up to the age of 26 for young people who have aged out of the state’s foster care program, and advocates are hoping it is taken up again in this month’s special legislative session. Edwards of the Children’s Defense Fund, noted that the state also has the opportunity to develop easy ways to ensure this continuing coverage for former foster youth — such as an automatic enrollment process to prevent lapses in coverage and avoid a burdensome application process.

The committee also recommended that Medi-Cal be available to youth detained in juvenile justice facilities, specifically through two bills also already approved by the governor that would provide federal funding to do so. One of the provisions would provide for acute inpatient hospital services and inpatient psychiatric services; the other would guarantee Medi-Cal coverage to detained youth awaiting adjudication.

Many public health advocates are celebrating Gov. Brown’s announcement last week of his intention to expand Medi-Cal. But others point out, there is still plenty of work to be done, especially on the federal side.

“The big hanging threat for us all — and I hate to say it — is the whole fiscal cliff thing,” said Edwards. With the Affordable Care Act approved by the Supreme Court and many related laws already on the books, she hopes all the hard work stays intact. “This is something that can be easily handled because we’ve already done the heavy lifting.”

Wu of the California Pan-Ethnic Health Network has also been warily watching the federal financial problems unfold.

“So much of the implementation of the Affordable Care Act is tied to the feds. What happens on the national level — or let’s say what continues to not happen on the national level — creates uncertainty,” Wu said. “The uncertainty makes it challenging to move forward. That said, I think California has an obligation to continue to move forward.”

 

Feds grant California $673 million for health marketplace

The US Department of Health and Human Services has awarded California a $673 million grant to build and run the online health insurance marketplace to be known as Covered California.

The money — nearly half the $1.5 billion awarded by the department nationwide Thursday — will go toward refining, testing and bringing the system online, establishing a paralell system for small employers and their workers, marketing and public education to inform the public about the implementation of the Affordable Care Act, enrolling customers into the system and evaluating the the effectiveness of the program.

The latest grant brings to nearly $1 billion the total amount from the federal government to California just to build and run the online marketplace — not counting hundreds of millions of dollars that the state has received to expand coverage to low-income residents as a bridge to the full implementation of the federal reforms next year.

 

Kids’ dental care at risk

California’s Medi-Cal program will soon be responsible for the dental care of half the state’s children. But advocates say the program is not prepared for the big increase in demand that will come with the closure of the Healthy Families insurance program and the implementation of the federal Affordable Care Act. This report from the Children’s Partnership explains the problem and offers some recommendations for ensuring that kids get the care they need.

 

Electronic health records improve care, but don’t save money

By Callie Shanafelt
California Health Report

Thirty billion dollars was set aside to help Medicare and Medicaid providers move their operations into the high tech world of electronic health records as part of the 2009 Health Information Technology for Economic and Clinical Health (HITECH) Act. Four years later, providers say electronic health records aren’t the time and money saver they hoped for — but, they added, electronic records do improve the quality of care.

Under the legislation, providers can apply for six years of funding to offset the costs of switching to this new way of operating. The earliest qualifiers received their initial grant of up to $63,750 for each provider to purchase certified software, a costly endeavor. The Department of Health and Human Services estimates that it will cost at least double that for a doctor to set up a new certified system, but often costs almost four times as much.

Among the first applicants was Alameda Health Consortium community health clinics, which coordinated their efforts to negotiate a better price with electronic health record vendors. LifeLong Medical Care CEO Marty Lynch, a member of the clinic consortium, said they decided to make the switch because data monitoring is essential to health care reform and improved quality of care.

“We need to use the best technology to assure the best quality, both for individuals and the whole patient population,” Lynch said.

Converting all nine locations in the LifeLong network will cost about $5 million. Lynch said they’ll get about half of that from the stimulus funds.

“As a non-profit community health center, we’re really stuck in terms of how we make up that difference,” Lynch said.

The implementation will likely increase their operating costs in the initial years as providers and staff learn the new system. Despite initial hopes that electronic health records would save clinics money, Lynch thinks they won’t make a difference. It is likely any staff positions he is able to eliminate because of increased administrative efficiencies will be replaced by IT costs.

Some providers have been able to make the switch with the grant covering a greater portion of the costs, said Raul Ramirez, Chief of the California Office of Health Information Technology overseeing the Medi-Cal incentive program.

After the initial infusion of funds to purchase software, clinics can qualify for further funding if they provide proof of ‘meaningful use.’ The 17 objectives of ‘meaningful use’ include using electronic health records for prescriptions, labwork, sharing with specialists and hospitals as well as communicating with patients.

St. Anthony’s Clinic in San Francisco was one of the early adopters of electronic health records. Medical director Ana Valdes said they are trying to decide if it is worth applying for the funding.

Until 2007, Saint Anthony’s handled scheduling and administrative aspects of the clinic electronically with all the information stored on one server at the clinic, until the server caught on fire. Seeing an opportunity to upgrade the system, they joined forces with their sister clinic Glide Health Services to apply for funding for software to manage the clinic and track medical records.

“At that time we were still under the myth of increased efficiency,” Valdes said.

The hope was that electronic health records could save money, increase efficiency and improve quality of care. But the new electronic health records system hasn’t increased their capacity to see more clients.

“It doesn’t matter how efficient your record keeping is,” Valdes said, “it’s based on your patients and what their needs are.”

But Valdes said the one promise electronic health records did deliver on was to improve the quality of care.

“We’re more prepared during the visit. We can show things more easily,” Valdes said. “It reminds you of a lot of things you might not have paid attention to.”

Studies show that electronic health records have significantly improved screening for diabetes, breast cancer, chlamydia and colorectal cancer.

Marty Lynch also hopes the switch to electronic health records will help LifeLong better track their patient population as a whole. For example, hypertension is a big problem with LifeLong patients. In order to track blood pressure with paper charts the clinic had to do individual audits.

“Once the data is in electronic health records we expect to be able to pull records and trends by provider and by clinic and understand better what we’re doing,” Lynch said.

The next major change for the state will be to develop a health information exchange with a consistent form of records that can be shared between providers, specialists and hospitals. This task is proving challenging because of all the competing vendors involved.

Providers are also expected to create a patient portal and use it to communicate with clients in order to qualify for future funding. This presents unique challenges for community clinics.

LifeLong serves more seniors than other clinics many of whom are not as tech savvy as younger clients.

Valdes said at first she assumed her clients didn’t have access to the Internet. She soon learned she was wrong.

“Surprisingly a lot of my patients have a Facebook page,” Valdes said. “I don’t even have a Facebook page.”

Now, she is more concerned that many of her clients don’t have higher than a third grade education. She wants to be careful about posting complex medical information that could cause confusion or worry.

“If it’s something really bad I don’t want my patient to see it on the portal,” Valdes said. “I want to call them up or have a face to face talk about it.”

Also 60 percent of their clients are monolingual Spanish speakers so the vendor would need to provide a multilingual site.

Valdes has yet to see anything to suit her clients.

“We don’t want to make a portal available if only one percent use it,” Valdes said.

Although the switch to electronic health records represents a big shift in the way providers operate, and didn’t provide the savings they had hoped, most say they wouldn’t go back because of improvements to patient care.

Lynch points out that the only way electronic health records may save money is by improving the quality of primary care and reducing emergency care. Cost savings won’t end up in community clinic’s coffers, even through they are paying for the technology that is improving care.

“In our world of community health centers, this is being done on the back of the non-profit organizations,” Lynch said “and that’s frustrating.”

 

Losing Babies

Why Prevention Efforts Won’t Close the Health Gap

Photo: Flickr/Kudaker

By Heather Tirado Gilligan
California Health Report

Fatimah Wilson is part of a social experiment under way in Richmond, Calif., an economically depressed corner of the San Francisco Bay Area.

Wilson is pregnant and is spending the day with other soon-to-be moms learning habits— from better eating to relaxation—to help them improve their health and the health of their babies. The goal: to erase the health disparity that results in African American infants in Contra Costa County dying at twice the rate of white babies before they reach their first birthday.

Wilson, 34, attended the West County African American Community Baby Shower, where she ate healthful food, received gifts for her baby and mingled with other local women. The women attended workshops where they learned, among other things, to use yoga-based relaxation techniques to reduce stress during pregnancy.

“We can change the statistics, because they are gross and grave throughout the United States for African American women and babies,” says Lynor Jackson- Marks, one of the organizers of the shower. Nationally, African American babies are more than twice as likely as white babies to die before their first birthday.

Reducing disparities and educating mothers-to-be were the event’s laudable goals. But years of research suggest that teaching mothers-to-be such as Wilson tips for a healthy pregnancy will only go so far. The gap in the rates of infant mortality can’t be explained by unhealthful behaviors. Instead, it is part of a pattern that goes back generations and persists despite an individual’s changes in income, environment, behavior and living conditions. It is a puzzle with no easy solution—and one that is almost certainly beyond what typical prevention efforts can achieve.

The Rise of Prevention

Preventive programs became popular over the past few decades, as public health officials focused on the difference in health status among racial and ethnic groups, economic classes and geographic locations. That focus reflected researchers’ new understanding of the close connection between health and social factors such as income and race, and is part of a larger movement to address preventable deaths.

“The idea that these are health disparities really emerged about 30 years ago,” explains Nancy Adler, professor of psychiatry at the UCSF School of Medicine and chair of the MacArthur Research Network on Socioeconomic Status and Health. The fact that they are avoidable and hit poor people and people of color harder is what distinguishes a disparity in health from a difference in health. “These differences,” Adler explains, “are avoidable and unjust.”

About 40 percent of deaths in the United States are attributable to avoidable illnesses such as heart disease, analysis by the Institute of Medicine has shown. Among the avoidable deaths, as Adler notes, are all of those caused by disparities.

Public health departments, traditionally focused on preventing communicable diseases, have begun shifting more of their resources to prevention. Contra Costa County, where Richmond is located, has targeted disparities for a decade. The federal Affordable Care Act also reflects the sea change in moving toward improving the health of people by reducing preventable disease, earmarking a huge sum—$10 billion—for prevention initiatives. Healthy People 2020, on ongoing federal initiative to reduce chronic illness and preventable death, names reducing disparities in health as one of their primary goals. They intend to achieve that goal by “Integrating prevention into the continuum of education—from the earliest ages on,” according to the program’s guiding framework.

Changes in behavior, researchers have come to think, can save lives, an understanding that has reshaped public health policy.

The puzzle of infant mortality

The focus on individual behavior as a way to address health disparities seems to suggest that differences in health behavior cause disparities. In the case of infant mortality, for instance, events such as the community shower might imply that African American mothers have bad habits that white mothers do not share. But that’s not actually true, researchers have found. Pregnant African American women, for instance, do not smoke more than other pregnant women or engage in other behaviors linked to higher infant mortality rates in numbers sufficient to explain the higher death rates of their babies.

The problem is much harder to untangle: It is the result of a lifelong diminishment of health that starts before birth and is passed on through generations. On close examination, what has been treated as a problem of an individual’s life choices emerges instead as a deeply rooted social problem.

“What we are seeing in differences between blacks and whites is not just a result of what is happening during the nine months of pregnancy, but actually has also to do with what happens prior to pregnancy,” says Dr. Neal Halfon. Halfon is a professor in the departments of pediatrics, health sciences and policy studies at UCLA, the director of the Center for Healthier Children, Families and Communities, and a former policy advisor to former Vice President Al Gore.

His groundbreaking 2003 article on disparities in infant mortality (co-authored with UCLA colleague Michael Lu) featured an illustration imagining the effects of circumstances on health as a series of upward and downward pressures over the course of a lifetime. Positive events boost health, and stressful, negative events hurt health. Because of poverty and discrimination, African American women often experience more stressful life events and fewer positive ones compared to white women, and as a result their health suffers. So does the health of their children, starting with their development in the womb.

During different periods of development, we are more or less sensitive to our environment. A baby’s initial development in the womb is a critical time. Other important moments occur in childhood. Trauma and stress during these periods affect health permanently. Chronic stress outside these critical periods of development hurts health too. The cumulative effect of stress and disadvantage over the mother’s lifetime, Halfon explains, affects the health of their child.

Some of the stress African American women feel comes from living in disadvantaged neighborhoods where violence and uncertainty in housing and employment are facts of life. And African Americans are poor at sharply disproportional rates. More than 27 percent of African Americans were poor in 2010, compared to about 10 percent of whites.

Health is closely related to income. As income levels for African Americans rose between 1968 and 1978 following the civil rights movement, for instance, mortality rates for African Americans declined. When African American income started to fall again in comparison to white income in the 1980s, the gap between the mortality rates of the two groups grew once again.

The relationship between race, income and health is seen specifically in infant mortality too. Researchers at the National Bureau of Economic Research, for instance, found a relationship between income and low birth weight. Raising the incomes of single, high school educated mothers by as little as $1,000 reduces rates of low birth weight, a predictor of infant mortality, by about 7 to 11 percent. The biggest improvements, they found, are among African American mothers.

Researchers have been trying to unearth the causes of these relationships for years. They do know that the feeling of being a part of an isolated group—one that other social groups view as distinct and below them on the social hierarchy—is a part of the experience of poverty that’s harmful to health. That connection was revealed by a ground- breaking study of British civil servants in the late 1960s, called the Whitehall Study, which showed a social gradient in health. People at the top of the social hierarchy have the best health, and people at the bottom have the worst. People in the middle of the hierarchy, who do not lack access to care and have sufficient incomes, also have worse health than those at the top of the hierarchy. The social gradient affects everyone’s health—and that may be the primary culprit in the poor health of low-income people.

Amani Nuru-Jeter, a professor of public health at the University of California, Berkeley, says that people understand when their place on the social ladder is on the lowest rung. “People know when they are living in those kinds of neighborhoods,” she explains. “And knowing that can be stressful.”

But the puzzle is even more complicated than that. African American babies who are not born to poor mothers are also more likely to die within their first of life than white babies, suggesting that the effects of poverty linger past the day when a woman is no longer poor. That fact also suggests that race affects health whether or not you are poor. African American mothers with a college education—an indicator of higher socioeconomic status—have infant mortality rates of 10 per 100,000 births. That’s three times higher than rates for babies born to white mothers with a college education.

For African American mothers, stress is “ever present in your life, because of how you are treated as a member of a racial minority in this country,” Halfon says. Kids are often aware of their status as a minority from a young age. “Children who experience the kind of racism that has to do with their status in society feel that status,” he says. “That can just wear against them over long periods of time.”

A telling fact that supports the relationship between discrimination and health is the lower death rates of babies born to African immigrants. African immigrants who are new to the United States have similar birth outcomes to those of white women. The children of African immigrants, however, have birth outcomes similar to those of African American women—a pattern not seen in white immigrants. The data suggest that something particular to living as a black woman in the United States is hurting the health of their children.

The experience of poverty and the stress of occupying a lower rung of the social ladder may be the cause of the disproportionate share of health problems borne by African Americans. But thinking about health in that way—as a social problem rather than an individual problem, and a systemic problem rather than a health behavior problem—requires a conceptual shift in thinking. And it means that a solution to health disparities will require much more than the current emphasis on prevention programs.

Global Approaches

People live longer on average in Sweden and Norway than they do in the United States, as do people in 49 other countries. The United States ranks 50th in life expectancy from birth, a number that is attributable at least in part to sharp health disparities, including the infant mortality rate.

Halfon points to the example of the protective social programs in Scandinavian countries, where education is equalized and unemployment benefits are generous enough to keep citizens from feeling that they will fall into an abyss if they lose their jobs. Social programs don’t kick in only after an individual is in acute distress, as they do here.

“We pay when people fail,” Halfon says. “Other countries invest for success—and invest for equity.” They have figured out that early investments produce social dividends for everyone. Our approach, he adds, lacks that kind of consideration. “If NASA used the same kind of philosophy that we used in social programs,” he says, “they would launch satellites into any old trajectory and spend all of their money to make sure they didn’t fall to the ground.” In light of the scale of disparities in problems like infant mortality, solutions that rely on individuals making different choices are unlikely to work.

Laurette Dubé, the founding chair and scientific director of the McGill World Platform for Health and Economic Convergence, is one expert pushing for a change of thinking about global health. Dubé’s work on the interconnection between systems such as the agriculture industry and worldwide problems such as hunger and obesity appeared in a recent special issue of Proceedings of the National Academy of Science.

Behavior is linked to health, as current approaches to reducing preventable illness suggest. But so are social and economic systems. “Right now public health experts are saying we should behave differently than we do,” Dubé says, “and they are right.” But, she adds, “if the whole machine is going 300 miles per hour in a direction that runs counter to the change we need to be making, we will never make any significant dent in the changes that need to be made.”

Improving health requires changes to entire systems, Dubé says. Public health plays an integral role in improving population health, but prevention efforts must be more closely tied to widespread re form to truly improve health. “It is clear that we need a whole social change.”

Change, Dubé stresses, is “critical.” She points to escalating health-care costs and their ever-increasing share of national budgets. Health-care expenditures in the United States, for instance, doubled between 2000 and 2010, according to analysis by the Centers for Medicare and Medicaid Services. “In industrialized countries,” Dubé says, “we are reaching the limits of what financially society can afford in terms of health care.”

Despite the urgency, sweeping changes do not seem to be on the horizon. “I’ve been seeing more that’s distressing,” Adler says. “It seems like we are going in the wrong direction on this issue.”

“We may not have the political will to do it,” she adds. “But disparities are preventable over time if we would make that a priority. We could drastically reduce them.”

Nuru-Jeter of UC Berkeley agrees that larger policy changes would help reduce health disparities. But since that is unlikely, smaller interventions remain important. “I definitely think we need broader scale society reformation,” she says. “In the meantime, we don’t just sit still and wait for that to happen.”

At the baby shower in Richmond, no one was simply waiting for better health to happen. Instead, the women carefully followed directions from an instructor to breathe in and out at a late-morning stress management class, doing what they could to improve their own health and the health of their children.

Prevention programs have been successful in the past. For example, they have been shown to sharply reduce smoking and the illnesses associated with tobacco, and disparities in infectious diseases like the flu were reduced decades ago. In short, prevention has made huge improvements in the health of the U.S. population. These programs, however, have dealt with problems that are simpler to solve, with a clearer cause and effect. But disparities such as those that affect infant health and mortality today are far more complex. They are a profound public health problem, but they may also be a problem that public health can’t solve.

 

Fullerton Center a How-To Guide for Successful Aging

Photo: Mrs. Logic/Flickr

By Matt Perry
California Health Report

A haven for aging enthusiasts, the Center for Successful Aging at California State University, Fullerton has adopted a holistic approach to growing old that embraces the full spectrum of human experience: mind, body and spirit.

The direct beneficiaries of this effort each year are 150 older adult residents from Orange county just south of Los Angeles who take movement classes on campus ranging from exercise to yoga and fall prevention.

Although the center sports a workout facility that rivals the finest gyms, perhaps more impressive is its position as a hub for teaching, aging research, and hands-on training for students in gero-kinesiology – the movement of older adults.

“I’m not aware of any other centers in the country that use a program such as this as professional preparation,” says Debbie Rose, the center’s vibrant and internationally-recognized aging expert.

Mental stimulation is provided by the university’s alliance with OLLI – the Osher Lifelong Learning Institute – which offers dozens of programs spanning foreign languages, Tai Chi, fiction writing, musical instruments, a New Yorker discussion group, and “50 Ways to Feel Thin, Gorgeous and Happy.”

Rose says aging studies are becoming more popular across the university.

“More of our interdisciplinary programs are adding a focus on aging issues,” she says.

Aging research is overseen by the university’s Ruby Gerontology Center, which includes its Institute of Gerontology – the study of aging.

“Good job Terry!” exclaims Rose to a frail senior wearing a neck brace in a morning balance and mobility class – one of the center’s growing number of courses targeting the unique needs of older adults.

Rose is surrounded by a phalanx of blue-shirted student interns who set up an obstacle course for a handful of seniors inside the small classroom that includes a “high five” slap for station number five. All are unfailingly positive and polite in an atmosphere that is both friendly and encouraging.

“Good job, everyone,” applauds Rose, wrapping up the class. “I saw some very good decision-making out there.”

The center adopts a Whole-Person Wellness approach to aging, inspiring older adults with its “six pillars” of health: emotional, intellectual, physical, spiritual, social and vocational.

Critical to the center’s success is exercise – a springboard for the other pillars, most notably socialization.

“For some of those individuals, this is the only reason they leave their home,” says Rose.

Inside the spacious gym, speakers blast Queen’s “We Are the Champions” and other upbeat workout tunes that help 77 year-old Eula Thomas speed impressively on the elliptical machine.

“You meet great, like-minded people you wouldn’t have met otherwise,” smiles Thomas, a retired sixth-grade teacher who has seen the center explode in her 13 years there.

“I find I have to keep moving every day in order for osteoarthritis not to take hold,” she adds inside the spacious facility that is also used for student classes and an employee wellness initiative.

Judy Aprile, program coordinator at the center, says effective exercise programs need to be customized for older adults. The complaint from seniors is that outside instructors push them too hard: “They thought I was 20,” is a common refrain.

“Not everyone is suited to working with older adults,” says Aprile, who received her master’s in gerontology from the university. “If one doesn’t really enjoy that population then it’s going to show.”

“It’s so much better than going to a gym,” agrees Judith Anderson, formerly executive vice president at the Fullerton campus. “You know when you have a question, that person didn’t have just a weekend certification.”

Another benefit of the center is its natural inter-generational mix – a growing trend that pairs wise elders with vibrant youth.

“I like making contact with the interns,” says Loren Duffy, 93, who started attending the center when he was 75. “It keeps me young. It keeps me going. I don’t think how old I am.”

“I love being around these youthful kids, and several of them are my Facebook friends,” smiles Glen Simar, 63, who has been exercising at the center every weekday for four years.

While the older adults learn about exercise from their instructors, the learning process is shared. Simar motions toward his student instructor Erin Blanchard, who is teaching her final class before graduation.

“She has a whole lot more confidence and leadership abilities than she had (when she started),” says Simar.

The center has expanded its movement classes to target the unique needs of older adults. Fit 4 Life focuses on exercise, while two balance classes and the center’s trademark FallProof program help seniors maintain agility to avoid debilitating and expensive falls — the number one cause of injuries and death for seniors nationwide.

The center offers yoga as well as a Health Promotion class that focuses on holistic living, including nutrition, brain games and spirituality.

Aprile says fitness classes have evolved since the center’s inception in 1998.

“Out of the 90 minutes that used to be purely exercise, we’re now pulling in different parts of wellness,” she says.

Student interns admit they often had outdated perceptions of older adults as tired and boring – even unproductive – members of society.

“As soon as I started interacting with these people and let my guard down, I didn’t see them as older adults,” says intern Max Tormohlen, who recently completed his undergraduate degree. “I saw them as people.”

While in high school, intern Skyler Winston watched his robust grandfather get sick, shrivel to under 150 pounds, and die. Winston then decided to commit his life to helping older adults stay healthy.

“I don’t want to see my dad go through that,” he says.

Tormohlen has traveled a similar route, seeing his grandfather die of lung disease, then watching the emotional toll it took on his grandmother.

“It was like a landslide,” he says. “Everything came down on her. Seeing that tears me up inside.”

Now graduating, Winston says he will probably return to get his master’s degree in gero-kinesology and receive his FallProof certification.

Fullerton offers both an undergraduate degree in kinesiology with an emphasis in gerontology, along with a master’s program in gero-kinesiology.

For kinesiology students interested in sports medicine or physical therapy, however, working with older adults is rarely a first career choice.

When addressing the university’s “Introduction to Kinesiology” class, Winston says perhaps one in 80 students will show an interest in working with older adults.

Yet for students interns who do volunteer at the center, their eyes often open wide with admiration for their elders.

“A lot of our students will move to gero-kinesiology after having an experience at the center,” says Rose, adding that nine out of 10 students who volunteer decide to work with seniors. “The best way to remove ageist tendencies is to get people involved with older adults.”

Student interns, who work outside the university at long-term care facilities, see first hand how older adults get warehoused and depressed.

“I don’t know why it has to be that way,” they tell Rose.

The center frequently hosts visitors nationally and internationally to study the inner workings of the center.

An international leader in aging and fall prevention, Rose first developed a balance test that is still widely used to assess older adults.

“I want to assess changes in their balance before they happen,” she says.

For Rose, the Center for Successful Aging keeps older adults vibrant, happy and productive.

“We want to be known as more than just a fitness center.”

 

Maternal mortality increases, disparities persist

Photo: Flickr/Bies

By Robert Fulton
California Health Report

Yolanda Serrano eagerly anticipates the arrival of her first child. The 22-year-old is due to give birth to her baby boy this month, and has regular checkups with her obstetrician at the Institute for Maternal Fetal Health, a collaboration between Children’s Hospital and the University of Southern California at Hollywood Presbyterian Medical Center in Los Angeles.

Doctors diagnosed Serrano with hyperthyroidism at the age of 12, and she treats the condition through a combination of diet and medication. Serrano’s thyroid levels are under control, and though they may increase after giving birth, there should be no complications to her or her child because of the condition.

“Now it’s just a matter of me continuing that diet, not trying to eat fast food as much,” said Serrano, a South Los Angeles resident studying criminal justice at East Los Angeles College.

Serrano is proactively maintaining her health during her pregnancy, a strategy experts think may be key to improving maternal mortality rates.

A recent report from the California Health Care Foundation shows that the maternal mortality rate in California has increased significantly since the late 1990s. Furthermore, the same report shows a wide disparity in maternal mortality between African American women and the rest of the population.

“A Mixed Bag: Clinical Quality in California,” authored by health care consultant Jennifer Joynt, is part of the CHCF’s California Health Care Almanac. Joynt is also the project manager Almanac.

According to the report, the maternal mortality rate in California more than doubled from 1999 to 2006 before declining in recent years. The rate was 7.7 deaths per 100,000 live births in 1999 and 11.6 in 2009. The national rate rose from 9.9 deaths per 100,000 live births in 1999 to 12.7 in 2007. African American women in California were nearly four times as likely to die from childbirth, suffering 41.1 deaths per 100,000 live births over a three year moving average from 2007 to 2009.

“The number of mothers dying during birth is still pretty small, but it is concerning that it’s been going up,” Joynt said.

“A Mixed Bag” doesn’t give specific reasons for the increase in maternal mortality, nor does it offer solutions. But the report, health care providers and officials offer insight as to possible causes for the increase. These include changes in the way maternal mortality has been reported; access to quality pre-natal care; an increase in the number of women having children later in life; an increase in the number of women with chronic diseases such as obesity, hypertension and diabetes; and an increase in artificial reproduction methods and Cesarean sections.

The California Pregnancy-Associated Mortality Review, published in April 2011, states that improved data reporting may account for approximately a third of the increase in the maternal mortality rate. However, this does not explain the entire increase, nor the ethnic disparities in the maternal mortality rate.

Sara Twogood and Alyssa Wittenberg, obstetricians/gynecologists with the Institute for Maternal Fetal Health and assistant professors of clinical obstetrics and gynecology at the USC Keck School of Medicine, point to the impact of chronic diseases and poor health on expectant and postpartum mothers.

Expectant mothers with chronic diseases such as diabetes, hypertension and obesity are at greater risks for complications relating to childbirth; and expectant mothers who are obese are at risk for gestational diabetes, gestational hypertension and preeclampsia. Obesity can lead to a hypercoagulable state, which can lead to blood clots, pulmonary embolism, stroke and heart attack. “A Mixed Bag” shows that one in five California mothers with a recent live birth was obese prior to pregnancy, 12 percent had diabetes and 10 percent had hypertension.

“If you’re dealing with a patient who has multiple chronic diseases, they’re a lot likely to have issues during their labor course or post-partum complications, things like that,” Wittenberg said.

Twogood added that an increase in artificial reproductive technology such as invitro fertilization could lead to increases in morbidity and possibly mortality; and that women are getting pregnant later in life. According to “A Mixed Bag,” women age 40 and older suffered maternal mortality at a rate of 41.8 deaths per 100,000 live births from 2007 to 2009.

“With increased age you’re at an increased risk for multiple health problems before and during pregnancy, like high blood pressure, diabetes,” Twogood said.

Another factor in increased maternal mortality may be an increase in Cesarean sections. Live births by Caesarean rose 40 percent in California from 2000 to 2010, according to the California Health Care Foundation report.

“If you think about the main reasons that would lead to mortality in a pregnant woman, pulmonary embolism is huge, and so is hemorrhage,” Wittenberg said. “And both of those things you’re at higher risk of after caesarean delivery.”

The disparities between African American women and the rest of population in relation to maternal mortality are difficult to explain, but professionals believe that the population is more susceptible to the potential causes of maternal mortality, such as lack of access to quality prenatal care and chronic disease.

“In general we don’t really know, but there’s a lot of theorized reasons as to why,” said Dr. Diana Ramos, Director of Reproductive Health of Maternal, Child, and Adolescent Health Programs for the Los Angeles County Department of Health, and an associate professor at the USC Keck School of Medicine.

While the increase in the maternal mortality in California since 1999 is alarming, successful steps have been taken to lower the rate in recent years.

According to the California Department of Public health, the maternal mortality rate for all women in California dropped to 9.2 deaths per 100,000 live births in 2010, and to 33.8 for African American women during a three year moving average from 2008 to 2010. While the numbers are still higher than they were in the late ‘90s, and the disparity remains, the declining numbers are a positive sign.

Dr. Shabbir Ahmad is the Director of the California Department of Public Health Center of Family Health’s Maternal, Child and Adolescent Health Program. He credits various programs implemented in recent years for the continuing decrease in maternal mortality, such as a partnership with the California Maternal Quality Care Collaborative. Toolkits created include looking at how to reduce non-medically necessary inductions and how to respond to hemorrhaging.

“I am hopeful as we move forward we’ll be seeing a better result,” Ahmad said. “My main concern is how we can reduce the gap between African Americans and other ethnic groups.”

The Los Angeles County Maternal Care Quality Improvement Project Implementation Guide was designed to provide public health departments with a guide to decrease obstetric hemorrhage.

“We took advantage of the electronic platform in which to disseminate all of the information and subsequent data has shown that there’s decrease in blood product transfusion in those hospitals that actually implemented it,” Ramos said.

The Institute for Maternal Fetal Health treats expectant mothers with a fetal anomaly. Patients receive top obstetrician care through USC and then Children’s Hospital steps in with care for the baby.

Wittenberg and Twogood see the key to the maternal mortality rate continuing to decline laying in better overall health.

“If patients are healthier before pregnancy, then the likelihood of having complications is a lot less,” Wittenberg said.

 
 
 

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