Community Report | HealthyCal - Part 5
 

Community Report

  

Arsenic and nitrate-tainted water part of life for school kids in rural areas

Photo: Flcikr/stevendepolo

By Leslie Griffy
California Health Report

When students start school in the Salinas Valley town of Bradley, they bring with them with pens, paper and notebooks. The school district provides their water bottles.

That is because tap water in this south Monterey County school is undrinkable. It’s contaminated with dangerously high levels nitrates.

Bradley’s approximately 49 students, kindergarten through 8th grade, aren’t alone in their lack of tap water.

Officials at schools in San Lucas, a little less than a half hour north of Bradley, discovered about two years ago that the water from their taps isn’t safe. Filling the gap, first with county emergency funds and now with water provided by a bottled water company, was a juggling act at first.

“It was a bit of surprise and sudden scramble to think that ‘uh oh, we have to do something,’” said Principal Nicole Hester.

The Washington Union School District, off Highway 68 between Salinas and Monterey, is also without potable water.

In fact, more than 75 applications to the California Department of Public Health’s fund for drinking water projects last year involved schools. Projects included digging second wells to ensure continued access to drinking water, replacing a 50-year-old redwood water storage tank and dealing with nitrates in Riverside and Monterey counties.

The danger from water with nitrates or naturally occurring arsenic, as is the case for the Washington school district, is serious. Schools must provide bottled water rather than boiled tap water because boiling would only concentrate the minerals, said Cheryl Sandoval, Monterey County Environmental Health Supervisor.

Nitrates are most dangerous to babies under 6 months, in whom it can cause blue baby syndrome, and pregnant women, Sandoval said. In others, nitrates are expected carcinogens. Exposure to arsenic can cause skin damage, circulatory problems, increased cancer risk and more.

“There’s a whole slew of concerns,” she said.

Poor water quality in schools is largely, but not entirely, a rural issue. In rural communities the problem is frequently nitrates, likely from neighboring farms where nitration-based fertilizers are used.

The well that provided water to San Lucas was flagged in a 2001 safety assessment as being “vulnerable to synthetic and organic compounds and nitrates” because of its location in an agricultural area.

But where else is a rural community to get water if not from an agricultural area? It’s a complicated situation.

“My community is involved in ag,” San Lucas principal Hester said. “We don’t point fingers. We don’t blame. We understand this is how things work. When you live in an ag area this is how things happen. We get it.”

It’s an issue the state has tried to solve with emergency grants designed to help find temporary water supplies for disadvantaged communities.

“Access to clean drinking water in our rural school districts is clearly a problem in California,” said state Assemblyman Luis Alejo (D-Watsonville) in a statement. “I will continue to focus on providing clean drinking water to those that have been consistently over-looked, including disadvantaged communities and our schools.”

Alejo, who represents most of the Salinas Valley, joined forces with Assemblyman Henry Perea (D-Fresno) this winter to push a series of bills focusing on rural water issues, including one designed to speed the approval process for water projects.

In a state where water leads to political battles, questions about unsafe drinking water aren’t always simply answered with agricultural runoff. The water at Washington district schools, for example, is contaminated with arsenic, which is common throughout groundwater in the region.

Four Monterey County public schools – Captain Cooper, Central Bay High School, and Echo Valley – use water that tested for high levels of lead and copper.

Leaders in schools without access to tap water find ways to make it work.

For Hester, it meant creating new rules in San Lucas schools. To avoid spills and conflicts, water bottles aren’t allowed on desks.

She said that providing ongoing emergency water “likely isn’t in anyone’s budget” and has worked with a bottled water company and the San Lucas Water District to find temporary solutions.

For the kids at Bradley schools, many have used bottle water the entire time they’ve been in school, said principal Ian M. Trejo.

The school started using bottled water because of a strong metallic smell seven years ago. It wasn’t until recently that tests came up positive and the bottled water became mandatory.

The school provides individual bottles for students to fill at water stations around campus and washes the bottles in the cafeteria.

“It probably sounds like a big deal to folks in an urban area,” he said. “But these kids start as kindergartners using bottled water. Anything else would seem unusual to them.”

Because the school operates the well, Trejo doesn’t receive extra cash for clean drinking water. To him, it’s a school program like any other designed to keep students safe and healthy in class and is funded by school.

 

Soul Foods of Long Beach

Veronica Mayes Jackson cooking a pot of beans and red peppers at a North Long Beach community center.

By Jessica Portner
California Health Report

Soul food was on the menu one recent Saturday evening where more than a hundred people packed into a North Long Beach community center. They weren’t coming for dinner, but to watch a screening of a new documentary film “Soul Food Junkies” put on by the Coalition for a Healthy North Long Beach.

The movie starts with filmmaker Byron Hurt narrating the autobiographic journey as an image of his father appears on the screen: “Sweet potato pie. Mac and cheese, black-eyed peas. You name it, he loved it…like most boys, I wanted to be like my pops so I ate what he ate. I’d stack my plate with grits eggs, salt pork, on toast, typical Sunday breakfast…I never questioned what we were eating or how much. Back then, I just enjoyed my mother’s delicious food.”

Hurt’s father went from being young and fit, he said, to being nearly twice his size. He died at age 63 of pancreatic cancer.

The film investigates the upsides and downsides of the quintessential American cuisine, the history and social significance of soul food to black cultural identity, and its effect on African American health, good and bad. The movie recalled how slaves were given bare minimum to survive and so they often grew their own food and used the same hunting and fishing techniques as they had in Africa.

Throughout the decades, that survival food turned into a delicacy. Plenty of carbohydrates, oily, and sugary foods became a staple part of the African American diet. However, the movie shows that, eaten in moderation with a few healthy modifications, “soul food can be good to us and good for us.”

After the film, Laura Marin, who was in the audience, noted that Latino culture had a tradition of unhealthy cuisine as well. “I grew up in Tijuana and I remember my grandmother cooking pancakes with lard,” said Marin. “Growing up, we didn’t make the healthiest dishes, like enchiladas, where you put the tortillas in oil before you bake them.”

Marin said many of her friends in Long Beach are vegetarian and she pescatarian. “As you become more aware, you make healthier choices.”

The Long Beach Health Department says that African Americans have higher rates of type 2 diabetes compared to Asians and Whites, and are more obese. Michelle Fino, a dietician with the Long Beach Health Department, who answered the audience’s questions, along with Hurt, said the obesity epidemic more broadly is tied to environmental changes in society’s relation to food. The obesity epidemic began in the 1980s she said, when sugary beverages, frappacinos, and energy drinks began to trickle into the marketplace.

“It is very difficult to eat healthy when we have so much access,” she said. “What we know about people is when there is a lot of variety — like a buffet — they eat more. It’s very difficult for people to change their eating habits.”

Kathryn P. Sucher, a professor at San Jose State University in the Department of Food and Nutrition and the co-author of the best-selling book, Food and Culture, agrees.

Sucher, a recognized authority on how diet, health, and disease are affected by culture, said traditional diets of most cultures were generally healthier. For example, she said the diets of African American factory workers who migrated north before World War II ate, for the most part, traditional and healthy diets of boiled greens with ham hocks, beans, and cornbread. They were growing their own vegetables. Latino immigrants in the U.S. ate less meat, more starch and fruit, but consumed smaller portions than they do today, she said. Asian Americans had generally had healthy portions of vegetables and meats, but often used too much sodium.

“Every culture has good and bad things about the diet. Some have more good than bad,” said Sucher. “One message would be to try to stay with traditional with the food. Switching over to fast food culture is not a way to go.”

There are 5.8 times as many fast-food restaurants and convenience stores in Long Beach as there are supermarkets and produce vendors, according to the Long Beach health department.

Sithary Ly, a community health advocate at Families in Good Health at St. Mary Medical Center in Long Beach, said that fast food consumption isn’t as pervasive in the Cambodian population there. Though they suffer from hypertension and other ailments, obesity isn’t one of them, she said. Cambodian families in Long Beach are often low income and the family tends to cook at home the staple Cambodian diet of rice, grilled meat, and vegetables, like stir fry broccoli.

“You spend less and can feed more in the family instead of going to restaurant… You eat with them and make it a fun family thing and it becomes a habit.’’ Though Ly does say that she is seeing more obesity in children as they also move into consuming an American fast food diet, including hamburgers, hot dogs and soda. “But they don’t get huge because they eat the Cambodian food.”

Sucher said that of course, genetics plays a huge role in disease in cultures regardless of cuisine. African-American, Cambodian-Americans and Mexican-Americans are all susceptible to type 2 diabetes, and the cuisines of those communities are mostly 50 percent carbohydrates (corn, rice, etc.), which make treating the disease hard to treat.

In a population the size of Long Beach, the total costs of medical care and lost productivity associated with overweight and obesity alone is about $287 million per year.

That is a trend a tight knit group of government and community groups are trying to reverse.

And their message seems to be taking hold, at least among some audience members at the screening. Long after the film was over at a North Long Beach community center, the audience lingered around tables in the back of the room, sampling a stew of freshly cooked green beans and red peppers and picking up recipes to make healthy soul food dishes at home.

 

Health care hard to come by for transgender people outside urban areas

Sandra Hinojosa standing outside of the California Rural Legal Assistance office in Salinas. Hinojosa, a transwoman, is a longtime member of Conexiones, an LGBT leadership group operated by CRLA in Salinas. Photo: Kate Moser/California Health Report

By Kate Moser
California Health Report

Nick McDaniel lives within a couple of miles of the sites of some of his worst memories.

Growing up in the farming community of Salinas, McDaniel, a transgender man, survived sexual assault and years of severe depression, multiple attempts at suicide, and many months spent in county psychiatric wards.

Life may have improved in places like Monterey County for transgender people, McDaniel said, but there’s still a long way to go – from fighting discrimination in jobs and housing, to making inroads in health care.

In seeking medical care, transgender Californians routinely face a number of challenges, particularly in more rural regions, where they often live their lives under the radar.

“I do think in Monterey County, like in most areas, the needs of transgender people are not well-recognized,” said Jennifer Hastings, a family practice physician who started a Transgender Health Care Program at the Westside Planned Parenthood in Santa Cruz in 2005.

People come a long way to see Hastings. Through word of mouth, many in the transgender community in Monterey and surrounding counties hear about her and find their way to Santa Cruz. Those who don’t have a car or the means to travel are often out of luck.

In many ways, Hastings said, transgender people are the least understood group in a society that sees gender in a strictly binary way. But she sounds a hopeful note that – while there’s a lot of work to be done – the medical profession is making progress in treating transgender people.

“My sense is that we will have more training in medical schools,” she said. “It will get better.”

Transgender people face discrimination from the medical profession. It’s even worse for transgender Latinos, according to a 2011 study. The National Transgender Discrimination Survey found that 23 percent of Latino transgender people reported being refused medical care because of bias, and 36 percent said they had put off going to the doctor when they were sick because they were afraid of discrimination.

“The stress of visiting a health care provider who is not aware of transgender issues can keep transgender people from seeking any heathcare needs for fear of being outed, or mistreated at health facilities, or simply not having enough information to educate the heath care provider on what they need as a transgender person,” said Axil Cricchio, a social science professor at California State University – Monterey Bay and a transman, in an email.

There is an acute need for better access to health care for transgender people. Respondents to the discrimination study reported more than four times the national average for HIV infection. Nearly half reported that they had attempted suicide.

Transgender people in Monterey County who want to see a doctor who is specifically trained to work with transgender patients must travel outside the county – whether to Santa Cruz, San Francisco, or San Luis Obispo. People who want a prescription for hormones and who don’t have a car or a ride out of the county, then, may turn to the black market.

“A problem we have in this county is ignorance and an unwillingness to learn by health care providers,” said Stephen Braveman, a gender specialist and sex therapist in Monterey.

One young doctor in Salinas, with Hastings’ help, is hoping to chip away at that problem.

Jennerfer Tiscareno, a second-year resident at Natividad Hospital in Salinas, plans to start a weekly clinic for transgender patients as part of her community medicine rotation.

She realized there was a need for such a clinic during her intern year, when she saw or heard about multiple patients who had come into the emergency room with stab wounds. They were all transgender women who worked as prostitutes and were attacked by clients, she said.

One of the main areas where Tiscareno sees a need is training for hospital staff. Some nurses, for example, were unsure of whether to call transgender women by their birth names, or by the names they have adopted as women.

“I always said there’s no question, call them by their name of which they would like to be called,” she said. “As a physician, maybe you have that impact of saying this is what you need to do. You don’t need to be specialized to deal with transgender medicine. It’s really just comfortability.”

Roselyn Macias, a transgender woman in Salinas, can relate to the problem of hospital staff being untrained – she’s been treated poorly by front desk staff in the past. Now she is considering getting a degree as a medical assistant; more transgender people should be trained to enter health care fields, she said.

“That helps transgender people – they’re not going to be afraid” to go to the doctor themselves, she added, if they see more people like themselves providing care at clinics and hospitals.

Braveman said some Monterey County hospitals refuse to place transgender patients in rooms that match their gender identities. Some providers in the county don’t understand the basics of transgender care and refuse to learn, Braveman said; some are rude to transgender people who come in, some refuse to give them care, and every now and then a provider will find it so bizarre that someone is transgender, he said, that they will call the police.

McDaniel, now a therapist, recalled seeing a specialist for a sinus condition; when the doctor inquired about his previous surgeries, and McDaniel told him about his gender reassignment surgery, the doctor made a point of crossing off “male” on McDaniel’s chart and writing in “female.”

He now travels to Santa Cruz to see Hastings for his medical care. “I got tired of going in and having to teach medical professionals,” he said.

Aside from genital surgery – which not all transgender people seek out – there is nothing particularly special that transgender people need from doctors. Hormone therapy replacement – which not all transgender people seek out – is common among all genders. All other health needs simply relate to the human body, Cricchio said, regardless of a person’s gender identity.

And not all doctors in Monterey County, of course, are dropping the ball on care for transgender patients. “What I’ve seen are doctors are pretty well-trained,” said Sandra Hinojosa, a transgender woman and leader, along with Macias, in an LGBT support group in Salinas run by California Rural Legal Assistance.

“Whoever you are – whether transgender or not – they give you good care,” she said in Spanish through an interpreter.

The only difference she experiences when she goes to the doctor, she said, is that medical staff, not knowing initially that she is transgender, will ask her if she’s had any children, and when her last period was. When she tells them she’s transgender, she said, they reassure her: “Relax, you’re not going to have a problem here. You’re OK.”

There are larger systemic problems – health insurance companies, for example, because the system is set up so that tests are linked with gender, routinely deny coverage for preventative care screenings such as prostate exams for transgender women or pap smears for transgender men.

Paying for health care is also a problem. The Latino transgender population faces a debilitating 18 percent unemployment rate, according to the 2011 discrimination study.

Macias said she’s had health insurance in brief spurts while working picking raspberries in the fields around Salinas and Watsonville. Without health insurance, hormones cost her $100 a month. She’s paid $20 a month for them when she’s had health insurance through work.

And it’s tough finding employment; Macias is trying to stay upbeat about her job search, but it’s frustrating. She always gets an interview if she applies online, but after the interview, employers typically say they’ll let her know. She repeatedly gets told that she’s overqualified, but she said she’ll take any job.

Lacking health insurance because of its expense, many transgender people – like many people in general – get their primary care at emergency rooms or clinics only when they absolutely need it. Getting to Santa Cruz, to San Francisco or south to San Luis Obispo for care from doctors who are trained to work with transgender patients is only a dream for many people in Monterey County.

“Traveling these distances are simply not an option for those who do not have the means for such travel, nor the money to finance their own health care,” Cricchio said.

 

Bringing health care to the mentally ill

By Leslie Griffy
California Health Report

Monterey County wants to revolutionize health care for one of the most difficult to reach groups, the mentally ill.

Its new program will create one-stop health care shopping for people whose main interaction with doctors is through the county’s behavioral health centers.

That means primary care, like regular doctor’s visits, flu shots or diabetes management, will be housed in the same building patients already visit for therapy or drug rehabilitation. And, all patient care will be coordinated on site.

“We think we can provide a wrap-around to help people really succeed,” said Amie Miller, Monterey County Department of Behavioral Health’s project manager for the plan.

The planned three facilities won’t just provide mental and physical health care, Miller said. Patients there will also be able to tap into healthy life skills courses focused on cooking, exercise and more. The plan brings together the county’s public health nurses, clinics and other services to fill an important gap.

“Last year we looked at our severely mentally ill population and 39 percent didn’t see a physician at all,” she said.

On top that, studies show that the lifespan of a mentally ill person in the United States is 25 years shorter than that of the general population.

The deaths aren’t be caused directly by the mental illness either, said Trina Dutta, public health advisor with the Substance Abuse and Mental Health Services Administration.

“These aren’t suicides,” Dutta said. Rather the mentally ill may suffer from related physical ailments like obesity or diabetes. Most often, she said, it is simply more difficult for them to get the health care they need.

Short visits that may not allow a patient to express their concerns or understand instructions can keep the mentally ill away from health clinics. Other barriers include the difficulty of making and keeping appointments while battling mental illness, a lack of insurance or transportation and stigma or fear of it.

Dutta’s agency, part of the US Department of Health and Human Services, is kicking in $400,000 a year for the next four years in grant money to support Monterey County’s program.

In the past, national and Monterey County efforts focused on bringing mental health care services to primary care facilities. So that a family doctor may ask if a patient is feeling depressed and then be able to refer them to a therapist down the hall.

It’s one way to create a health care home for patients, a place where all of their needs are met.

But, that doesn’t serve the severely mentally ill patient as well, said Dr. Wayne Clark, director of Monterey County’s Behavioral Health Department.

“Other populations don’t have an existing chronic illness,” Clark said. “We have special clinics throughout the county that are the place they go to for health care. We need to allow them to have other health issues addressed there, too.”

Integrating all of the services in one location is part of what makes Monterey County’s plan so innovative, Dutta said. Of the 90 grants her agency awarded to bring primary care to mental health care settings, the one to Monterey County is one of the only to include complete health care coordination.

That also means a lot of work.

Project manager Miller is meeting the public health nurses and officials from the county’s health clinics to figure out how they will share patient documents and gauge outcomes.

But she believes that the plan will drop barriers to care while increasing the efficiency of behavioral and physical health care for the 1,800 patients expected to access the centers each year.

The first integrated behavioral health care center in Monterey County is scheduled to open in April. For now, locations are planned on the grounds of the former Fort Ord, at Natividad Medical Center and in King City.

 

The Calling

The Rev. Chip Murray. Photo: Robert Fulton/California Health Report

The Rev. Cecil Chip Murray continues decades of service

By Robert Fulton
California Health Report

The Rev. Cecil L. “Chip” Murray sits in the small conference room of the center that bears his name. He is both humbled and amazed by the fact of the eponymous Cecil Murray Center for Community Engagement, part of the University of Southern California’s Center for Religion & Civic Culture.

The Murray Center uses resources at USC, including the schools of law, business, social work and public policy, to bring in speakers from across the country. The center promotes civic engagement and economic development, and has launched a Faith Leaders Institute that addresses organizing, leadership, community development, civic engagement and more.

“The genuine essence of religion is not God wants you to have it, but God wants you to share it,” Murray says in his slow, steady baritone. “You would take a portion of what you have and share it with those who don’t have to lift them. The same way you came from blue collar to white collar, they can come from blue collar to white collar. The same way you came from zero to hero, they can come.”

Murray’s energy masks his 83 years and belies the gray in his hair. His eyes still possess a youthful hopefulness for what’s good and what’s right. His commitment to social justice is also reflected in decades of service, first in the U.S. Air Force, then in the ministry, and more recently as chairman of this center dedicated to positive civic engagement, tucked against the 110 Freeway just a few blocks north of USC’s campus in Los Angeles.

Murray is perhaps best known for his role in the civil unrest in 1992 that followed the incendiary Rodney King case. As pastor of the First African Methodist Episcopal Church of Los Angeles, a role he held for 27 years, Murray struggled to keep the peace. Church members went out into the immediate community in an attempt to stop the violence, and when that didn’t work, they welcomed those displaced by fire into their house of worship. Murray went on television with talk show host Arsenio Hall to plead for people to “be constructive in your anger, not destructive, not self-destructive.”

The First AME Church has a storied history in South Los Angeles. Its membership peaked at 18,000 in the 1990s; today it stands at 19,000. Outreach efforts flourished under Murray’s long tenure, and church programs ranged from homeless assistance to a “lock in” program that steered young people away from drugs and gangs. “The black church,” Murray told the Los Angeles Times in 1990, “must be the salvation of black men and black boys.”

When asked about the 1992 riots, Murray looks off to the side and responds with a quote from author Langston Hughes about a dream deferred. The Murray Center’s mission, as well as that of its namesake, is organizing the nonprofit and faith-based community to try to ensure that some day no more dreams are deferred.

The center has added 500 organizations into its database since it opened in late 2011, Murray says, with an emphasis on South Los Angeles specifically and Southern California at large. Its focus is on issues such as education, housing, reentry, substance abuse and legal counseling.

“If people have access and if they have motivation, then the two will go together for success,” Murray says.

Major challenges face underserved and minority populations in modern America, Murray says. He draws upon Martin Luther King Jr.’s assertion that the three major threats to mankind are racism, war and poverty. In Murray’s opinion, poverty is society’s biggest threat, and he breaks it down into what he calls the Four P’s: poverty of family, poverty of pocket, poverty of education and poverty of image.

Murray sees poverty as more than empty pockets. He wants to get beyond discussions of poverty that use the old adage about being given a fish instead of being taught how to fish. He wants to go a step further—he wants to see more people owning the pond.

“You won’t last or linger without that component,” Murray says. “Teach them how to fish, yes, that’s fine. But it won’t work much for the next generation.”

Murray sums up poverty of family as too many missing fathers. For that he blames the disproportionate number of African American men in the U.S. prison system, for which he cites unfair sentencing practices relating to drug charges. Establishing reentry programs for prisoners coming out of the system is one of his priorities.

Murray sees the poverty of education as stemming from high dropout rates in poorer communities. Lack of an education leads to lower earning potential, which leads back to poverty of pocket. Too many young African Americans aren’t aware of or don’t take pride in accomplishments made by those who came before them—the cause of poverty of image.

When considering health care, Murray ties his Four P’s together. “When you’re poor in pocket, family, image and education, you’re going to be poor in health,” he says.

Murray’s current work reflects what he started as the pastor at First AME Church, where he stressed community engagement.

The Rev. Mark Whitlock met Murray in 1982, when his future wife took him to the First AME Church. Whitlock is now a pastor at Christ Our Redeemer AME Church in Irvine and executive director of the Murray Center.

“I think the Rev. Murray has a deep passion and compassion for people,” Whitlock says.

Murray sees more recent examples of dreams deferred, from Occupy Wall Street to the Arab Spring.

“The 99 percent are rebelling against the 1 percent,” he says. “It’s a difficult lesson to learn, because as Lord Acton says, power tends to corrupt, and absolute power corrupts absolutely.”

Murray recently sat on a blue-ribbon commission investigating jail violence at the Los Angeles County Jail. The commission found a “persistent pattern of unreasonable force.”

“There has to be monitoring of power,” Murray says during the interview at his center. “You have to have surveillance, monitoring, disciplinary rules, and you have to insist on the execution of these rules.”

Murray has been training for a job like this all his life. He grew up in Florida and has been married to his wife, Bernadine, for 54 years. The couple has one child, Drew, also a reverend. Murray’s mother died at a young age, and his father worked as a school principal. People said that the young Cecil, who had the same leadership qualities as his father, was a regular chip off the old block, hence the nickname.

Early on, Murray understood the importance of education and attended Florida A&M College (now university) in Tallahassee, where he majored in history. He repaid his $1,600 scholarship by enlisting in the Air Force.

It took a harrowing personal experience to turn him to the ministry. Though he had an interest in the ministry at an early age, an episode in the Air Force called Murray to service. As he tells the story in his memoir “Twice Tested by Fire,” during a failed takeoff attempt, the cockpit filled with flames, and he heard a voice telling him to use the escape hatch in the rear of the plane. Murray survived, eventually retired from the Air Force and entered the seminary.

Murray enrolled in the Claremont School of Theology. After he completed his education, his first pastoral assignment from the African Methodist Episcopal Church landed him in Pomona. That was followed by stints in Kansas City, Kan.; Seattle; and finally Los Angeles in 1977.

“I looked at pastors who were primarily for themselves instead of for the people, and I thought that they should be working to lift their communities and their people and not themselves,” Murray says. “So I shifted from being the critic to being the participant.”

He works from 9 a.m. to 4 p.m. at the center, followed by additional duties such as prison or hospital visits. Though he is at an age when most would retire, Murray continues his mission. He exercises five days a week and ends his days by reading and watching the occasional basketball or football game.

“We’re going to keep growing and keep the dream going,” Murray says, “and the rest is up to the boss.”

This story originally appeared in the California Health Report magazine’s Winter 2012/2013 issue. Read the rest of the magazine here.

 

More minorities needed in marrow registry

Camila de La Llata is in need of a marrow transplant to cure acute leukemia.

By Melissa Flores
California Health Report

There are 10 million potential donors registered in the United States for the 10,000 patients who annually are in need of a marrow transplant, but some patients have a harder time than others finding a donor.

Camila de la Llata, of Monterey, is one of 820 patients in need of marrow transplants in California. She’s Hispanic and White, and because of her mixed ethnic background, she may have a difficult time finding a donor.

Her doctors have said chemotherapy will not cure her or keep her leukemia in remission so they are rushing to find a match.

Seventy percent of patients with leukemia, blood cancers or other blood disorders for which a marrow transplant is the only treatment, like de la Llata, do not have a match in their own family.

“Tissue type is inherited,” said Kimberly Nall, an account executive with Be The Match in Northern California, a nationwide registry for marrow donors. “We are more likely to find a match in one’s own ethnic or racial heritage.”

Nationwide, only 10 percent of potential donors are of Hispanic or Latino heritage. Only 4 percent are of multiple race. The vast majority of registered donors are white, making up 71 percent of registered donors.

American Indian and Alaska Natives make up 1 percent of the registry; African American or Black 7 percent; Asian 7 percent; and Native Hawaiian or other Pacific Islander .2 percent.

In December, community members organized a marrow registry drive at Salinas Valley Memorial Hospital in hopes of finding a match for de la Llata.

Nall said the biggest challenge for Be the Match in increasing minority donors on the registry is dispelling myths about what is entailed in being a donor.

“Some people have a misunderstanding about the process and some are hesitant to give out personal information,” she said. “We ask for contact information and personal identifying information, such as a social security number or driver license.”

She said that those who register to be a donor do not have to provide the social security number and driver license, but it helps to locate donors if they do come up as a match with a patient. There is one registry for marrow donors in the United States and people remain on the registry until they are 61.

“What it was to donate marrow is very different,” Nall said, than donating 20 years ago.

She said 76 percent of the time, a patient’s doctor requests a non-surgical, outpatient procedure that is similar to donating platelets or plasma, which requires an IV. In the other 24 percent of cases, donors undergo a surgical, outpatient procedure that requires general or local anesthesia.

The nonprofit has been making efforts to increase the number of minority donors that are registered, including outreach to Hispanic and African American communities. Some has been done on a national level, such as working with celebrities such as Robin Roberts and Shaquille O’Neal.

But more often they work on a local level by conducting donor drives such as the one for de la Llata, with churches, community groups or minority student groups.

“We’ve found really me as a staff person showing up in the community does nothing,” Nall said. “Every drive we do has to have someone in the community tied to the cause.”

The December drive in Salinas focused on de la Llata. She was enrolled at California State University, Fullerton, where she was majoring in theater education and directing when she was diagnosed with acute leukemia. She is an exhibition Latin and ballroom dancer and choreographer.

A webpage in honor of de la Llata has raised more than $8,000.

Be the Match will host its second annual Be the Match Walk/Run in San Jose in April 6 as a fundraiser and to raise awareness.

 

Clinton Takes On Health Care

Hosts Conference in Southern California

Former president Bill Clinton speaks at the Health Matters Conference in La Quinta.

By Suzanne Potter
California Health Report

Gary Mendell choked back the emotion as he stood before the crowd at the Clinton Health Matters Conference, held recently in La Quinta, California. He told the story of his 25-year-old son, Brian, who hung himself after years of battling ADD and drug addiction. “I wish I could tell you that the anguish dulls with time. But it doesn’t. Knowing that my son died of a disease that is preventable but we don’t prevent it. It’s treatable but we don’t treat.”

Mendell is now fighting in Brian’s honor – and announced the formation of a new national nonprofit to improve prevention and treatment of addiction. His commitment was one of 31 pledges made at the conference – aimed at getting individuals and communities to take action to improve health and bring down costs.

In his opening remarks, Former President Bill Clinton said his foundation has worked with dozens of companies and non-profits to make best-practices a reality. “Today there will be pledges that amount to 100 million dollars that will help more than 25 million people across America.”

Actress and singer Barbra Streisand announced a two million dollar donation to the Barbra Streisand Women’s Heart Center at Cedars-Sinai Medical Center. Walmart is rolling out a program to put a “healthier choice” icon on certain foods and they are working with suppliers to eliminate trans fats and cut excess sugar and sodium in packaged foods.

Health insurance giant Humana is launching a program called Humana Vitality that rewards people for losing weight, getting active and eating better.

General Electric is putting six million dollars into a “Healthymagination” private/public health program that gives people online tools to improve their health. GE has also pledged to take nationwide a program that they started in Cincinnati, Ohio. There, GE worked with hospitals, nonprofits and government to improve coordination in patient care and encourage hospitals to publish what they charge for various procedures. GE says the program has already saved the region 200 million in emergency room costs over the past two years.

Tenet Healthcare, which owns Desert Regional Medical Center in Palm Springs and JFK Hospital in Indio, is hiring more case workers to follow-up with patients after they are discharged, in an effort to keep them from being readmitted.

One overarching theme emerged again and again: regular people have the power to fix most of what ails the health-care system – and the economy – just by embracing a healthier lifestyle.

Former President Clinton opened the conference with a warning about obesity, heart disease and diabetes, “About 70 percent of adults have already developed a preventable chronic disease which contributes to rising health care costs and reduces workplace productivity and (leads to) premature death. He cited a Columbia University study that found the cost of treating preventable diseases will rise by $48-66 billion a year if current trends continue.

Dr. Donald Berwick, former Administrator for Medicare and Medicaid, said genetics determine 50 percent of a person’s overall health. Health care (or lack thereof) is only 10 percent, and a person’s lifestyle makes up the rest.

“Forty percent of our health depends on our choices: What we eat, how much we walk, the risks we take, the substance abuse, the unprotected sex, the guns and violence in our streets, the pollutants in our air, the seatbelts and and bike helmets that we use or don’t use,” Berwick said. “That is very good news. That means that we can do wrong and what we do well largely into our own hands.”

Renowned heart health expert Dr. Dean Ornish said three-quarters of U.S. health-care costs are related to chronic disease. Ornish said he’s pleased that Medicare now covers his nutrition program and emphasized the benefits of a better diet and more exercise. “These approaches can not only help combat most chronic diseases but it can actually reverse them,” Ornish said. “They can even turn on good genes that protect us, and turn off harmful genes.”

Ornish added, “We need to address the more fundamental causes of why people get sick. We will find that we can have better healthcare available for more people for lower costs.”

President Clinton said that we need to give people incentives to make healthier choices rather than continuing to pound home the message that overeating, a sedentary lifestyle, drugs and smoking can kill. “We have to create positive incentives,” Clinton said, “not just threats about death or injury.”

The discussion also centered on improving transparency in medical care while protecting privacy. President Clinton lauded a unique law in Pennsylvania that requires hospitals to make public the prices they charge for various procedures and their success rates. Dr. Berwick called for a similar, national database and said that the Affordable Care Act (ACA) gives the government the authority to set it up, but Congress needs to mandate that Medicaid participate.

The experts also lamented the massive shortage of primary care doctors. They suggested that the health care system be overhauled to make careers in family practice more attractive to medical students.

Dr. Ornish suggested a new approach, where multiple specialists treat patients as a team. “The managed care approach … is forcing doctors to see more patients, in less time for less income, driving the best doctors out of medicine. We can create a new paradigm which is based on the quality of care and not just more care.”

Dr. Berwick agreed that the current system encourages hospitals to over-treat patients. “They’ve been conditioned by decades by a broken volume-based healthcare payment system to maintain business plans that depend on doing more, not less.” He says the ACA is a step in the right direction. “There are new emphases on payment for chronic care, coordination and outcomes.”

Technology also figured in plans to improve health care outcomes.

Dr. Peter Tippett, chief medical officer and vice president of Verizon’s Innovation Incubator vowed to facilitate health care transformation with technology and mobile apps. For example, Verizon now makes a watch that works like On-Star – you push a button and it makes a call to a relative or to emergency services. The watch also has a GPS tracking device that helps find wandering Alzheimer’s patients. And it can measure an elderly person’s movements and send a message to family if he or she doesn’t move for an extended period of time and may have fallen.

ABC News Medical Director Dr. Nancy Snyderman challenged the group to help more seniors age in place – and be monitored in their homes so they spend less time in expensive hospitals and nursing homes. GE announced a joint venture with Intel to offer remote patient monitoring, so doctors can check on a patient without an office visit. GE is also working on a refrigerator that can dispense medicine in the correct amounts.

Many experts also called for hospitals, insurance companies and government agencies to make databases compatible. Tippett lamented, “Almost no sharing actually happens. If we could get health information technology in healthcare to be similar to what they use in banking, everybody would be dramatically healthier…700 billion dollars in savings are available if we could only leverage the kind of information that we already have in meaningful ways.”

Berwick noted that seniors in private Medicare programs get information every month on what drugs they take and what it costs. “When they know that, they are incredible buyers and seekers of value.
The broader we get that idea (of transparency) in the system the more powerful it’s going to be. “

The first Health Matters conference led to the creation of the Clinton Health Matters Initiative, which is a seven year effort to improve health in two regions: Little Rock, Arkansas and the Coachella Valley.
The Coachella Valley, which became a part of the Health Matters Initiative late last year, is already implementing plans to improve health.

Carolyn Caldwell, CEO of Desert Regional Medical Center in Palm Springs said the hospital is revamping their cafeteria food to offer more healthy choices. The medical center is also partnering with the city of Palm Springs on a $25,000 fundraiser for the Clinton Health Matters Initiative, Caldwell said.

The Desert Healthcare Foundation (DHF) has funded a new manager to work with all three local school districts to combat childhood obesity. DHF Vice President Kay Hazen said, “The realization that we were raising a generation of XL children and our kids were becoming the first generation who might not live as long as their parents spurred us into action.”

A panel of local leaders also discussed ways to optimize the environment to encourage people to exercise more and develop stronger social ties. That involves cleaning up graffiti, building more sidewalks and parks, and helping people form walking groups and neighborhood watch programs with social networks. The City of Coachella has incorporated health concerns into its general plan, so any future development will include more space for recreation.

In December the CHMI gathered local leaders to write a blueprint for further action in the Coachella Valley. The plan will be released in early February.

Note. This article was updated Feb. 8 to correct the identification of Dr. Peter Tippett.

 

Virtual dental homes care for vulnerable populations

Registered Dental Hygienist Ushma Patel, upper right and Dental Assistant Navigator Leslie Estrada, far left, take photos of three-year-old Christopher Chacon's teeth during a dental check-up and cleaning on site at Magnolia Head Start preschool in East Palo Alto. The preschool is participating in the Virtual Dental Home Demonstration Project.

By Lynn Graebner
California Health Report

Three-year old Christopher Chacon got his teeth cleaned, treated with fluoride and x-rayed in a corner of the administrative office at Magnolia Head Start Pre-School in Palo Alto.

Many children at the preschool may have a dentist, but they don’t go regularly. They show up when they have pain, said registered dental hygienist Ushma Patel. So she and dental assistant Leslie Estrada go to them to offer and encourage preventative care.

They visit six sites in the county and sometimes treat more than half the class.

Patel works for Ravenswood Family Dentistry, which serves low-income and uninsured residents in San Mateo County, and is one of 11 organizations taking part in a telehealth initiative called the Virtual Dental Home Demonstration Project.

The project provides dental care to more than 2,000 people in California, including low-income children at school, people with disabilities and elderly people at residential care facilities.

The Pacific Center for Special Care, part of the University of the Pacific’s school of dentistry in San Francisco, operates the project. They hope to eventually improve oral health for underserved people nationally.

The project is giving dental care their clients would not otherwise get, said Dr. Paul Glassman, director of the Pacific Center for Special Care and a professor of dental practice at UOP.

Registered dental hygienists and registered dental assistants go into schools, nursing homes and residential facilities for people with disabilities. They bring portable imaging equipment for x-rays and photographs, supplies to do temporary fillings and an internet-based dental record system. They upload images and dental and medical histories to a website where a dentist reviews them and creates a treatment plan or refers patients requiring more complex treatment to a dentist.

Yogita Thakur, Dental Director at Ravenswood, sees education as one of the major goals of the project.

“Perceived need is the number one reason people seek care or don’t seek care,” she said. If people believe dental caries is preventable, they will seek preventative care, if they think they’ll get cavities no matter what, they won’t seek care, she said. “It’s about educating the parents.”

Carmella Gutierrez, President of Californians for Patient Care, noted that more than a quarter of children ages two through five and half of children ages 12 to15 have had tooth decay, which can be linked to poor digestion and heart and respiratory disease.

“Having dental care is linked to overall health,” she said.

The CDC reports that tooth decay affects children in the U.S. more than any other chronic infectious disease. Yet in 2011, only 27 percent of children eligible for Medi-Cal received dental care, down from 34 percent in 2009. Those figures come from California Medicaid Management Information Services and are cited by Glassman and others in the July 2012 issue of the California Dental Association Journal.

The goal of the project is to show that hygienists and their assistants can keep many people healthy by providing education, assessments of dental disease risk, cleanings, fluoride varnishes and dental sealants.

Results from the project sites so far show that about 50 percent of participating patients can be kept healthy by a dental hygienist. The other half are being referred to dentists for more complex treatment, Glassman said.

“I think it’s a tremendous advance,” Glassman said. “You’re talking about a population that doesn’t get dental care.”

Even if all the research points to the prudency of moving virtual dental homes into mainstream dentistry, many challenges remain, Glassman said. The way we pay for dental care and the laws governing telehealth are designed for our current system, which pays for procedures and dental visits.

“Making the population healthier is not what our current compensation systems are based on,” he said.

That’s the next phase of the Virtual Dental Home Demonstration Project. In the next couple of months Glassman anticipates potential funding for designing a health outcomes-based payment system that the Medicaid program could use. Dental providers would be compensated based on the health of their patients, not the number of procedures they perform.

Glassman said the main goal of the project is the same as the overall healthcare reform movement in the U.S.: better patient experiences, better health and lower costs.

“We’re going after the same thing in dental care reform,” he said.

 
 
 

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